What do you want to ask the physician/team? Prepare a list of questions you’d like to ask so you’re prepared for the appointment.
- Is mental health support available?
- Are there any surgical or medical emergency care precautions you should be aware of?
- Are there multidisciplinary services you can access such as: rehabilitative, physical, occupational therapists?
- What forms of exercise are safe and effective?
- Is there a way to access specialized physical therapy at the clinic?
- Are there any activities that should be avoided?
- Is there any special equipment or devices that could improve independence and safety?
- Will you need pulmonary or cardiac monitoring?
- Is there a dietitian you can see to strategize optimizing your health?
- Is there access to genetic counseling?
- Is there any type of registry you can join?
- How can you remain up to date about research development?
- Are there any clinical trials to learn about?
A packet will be mailed to you, but it can also be downloaded here. It is best to bring the completed paperwork with you to your appointment.
After the initial appointment, some returning patients can be seen for follow up visits virtually using the MyChart Patient Portal. The scheduling department can help set this up for you if it’s recommended by your physician.
It is important that your doctor receives your medical records before your appointment. Your records can give your doctor important clues about what’s going on with your health, what runs in your family, and what you may be at risk for in the future.
About your multidisciplinary team
Doctors who specialize in diseases and disorders of the brain and nervous system. A neurologist often coordinates the care of a person, providing treatment and referring the person to any number of specialists as needed.
Doctors who specialize in the heart and cardiovascular system. They monitor heart health and function and treat heart conditions.
Doctors who specialize in disorders of the lungs and structures associated with the lungs, such as the muscles that control breathing.
Doctors who specialize in the bones and joints as well as the muscles, tendons, and ligaments attached to the bones.
Experts in the use of food and nutrition to promote and manage health.
Rehabilitation doctors who specialize in diagnosis, treatment, and management of conditions that can cause pain or limit function.
Movement experts who improve quality of life through prescribed exercise, hands-on care, and patient education.
A healthcare professional that focuses on an individual’s ability to perform the broad range of everyday life activities. OT promotes independence by improving the skills required to perform these activities and/or teaching alternative ways to accomplish them.
A professional that helps with the practical aspects of illness and disability such as insurance, financial aid, equipment and housing needs, transportation, home care, community resources, etc.